Day 5 - NDSAW

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Day 5 - NDSAW
Meet our Self-Advocates!!  Rayann Oberkirsch What does the statement “Nothing about us without us” mean to you? I agree with that. It’s about being a good self-advocate. It’s means listening and respecting all people., including people with Down Syndrome. Where do you see yourself in the future? Housing is important to me. I want a home where I can bake in my kitchen. I’d like to live in my own home with a friend, a support worker and a husband. I was born in White City and I might live there. My dream job is to work in a garden. I’d like to go to university, and I’d like to write books. What do you want people to know about you and Down syndrome? I have a family just like everyone else. I go to school, and dance classes. I am mostly like everyone else. I was born with Down syndrome. I have to work hard to learn things. But I can make people laugh because I see things differently than them. And sometime it’s pretty funny. What do you like the most about being part of SDSS? Drawing pictures about my future at self-advocates meetings with Ellen. We get together and talk about how to make our lives healthy. We wrote speeches and made movies of ourselves giving out speeches in front of each other.   Tommy Wright What does the statement “Nothing about us without us” mean to you? I feel happy. I like it when people listen to me. I like to have a plan. It’s good when I make my own plan. Where do you see yourself in the future? I see myself in New York City doing theatre work on Broadway. I see myself living in my own home. I’m taking my first university class now. It is a musical theatre class. There are a lot of good classes in university. I’d like to try lots of jobs. What do you want people to know about you and Down syndrome? I have Down syndrome and I’m part of my community. Having Down syndrome means I have extra genetic material, like Superman. It means I can be on the SDSS self-advocates committee. Having Down syndrome is just who I am. What do you like the most about being part of SDSS? I like the meetings on the phone with the whole board. Auntie Ellen comes over to call in with me. Brad calls in from Saskatoon. Jocelyn and Faye call from Colonsay. Rayann calls from her house. People join in from all over the province. We talk about the Fun Run, the Christmas Party, new baby packages and other business. I like being able to say what I think.   Brad McVicar What does the statement “Nothing about us without us “mean to you? It means ask me (someone with Down syndrome). Where do you see yourself in the future? I think at my job or maybe another job, with a girlfriend and a dog. My own house and my father Duncan and brother Andy will come see me there. What do you want people to know about you and Down syndrome? I have Down syndrome but I am not Down syndrome. I am just like you. What do you like the most about being part of SDSS? I like to visit on the phone and I like my friends Tommy and Rayann. I like to be in charge of things and that SDSS listens, and I can make change. It’s like having more family.      

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